Barth Syndrome Foundation
Family Services and Advocacy: Shelley Bowen
2005 Palmer Avenue #1033, Larchmont, NY 10538 — USA
Toll free: 855-622-2784 · Local: 914-303-6323
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Affiliati
Insieme alla Barth Syndrome Foundation, le associazioni affiliate nel mondo condividono l'impegno per il sostegno alle famiglie, l'informazione e la ricerca sulla Sindrome di Barth.
Barth Syndrome UK
Charity #: 1181830
Michaela Damin, Chief Executive
1 The Vikings, Romsey, Hampshire S051 5RG — United Kingdom
+44 1794 518 785
Barth Syndrome Foundation Canada
Charity #: 86102 2002 RR0001
Susan Hone, President
162 Guelph Street, Suite 115, Georgetown, ON L7G 5X7 — Canada
1-888-732-9458 · 905-873-2391
Association Syndrome de Barth France
Charity #: 533 127 759
Florence Mannes
13 rue de la Terrasse, 92150 Suresnes — France
+33 6 15 58 02 32
Associazione Barth Italia
Elena Bilcu
Via Carlo Prina n. 15, 20900 Monza — Italy
+39 339 111 7252